10.14.2009

Amanda from Confessions from HouseholdSix has given me this:

I think. There were a few awards up there but I am lifting this one because I haven't gotten it yet so it will look shiny in my sidebar.  Amanda grew up in my hometown and is my sister in all things fibromyalgia and doom and gloom and sunshine.  I love doom and gloom as it pertains to neural issues.  And sunshine as it pertains to everything else.

And Leah Rubin at Funny is the New Young has given me the Honest Scrap award.  Leah is hilarious.  You know how some people are funny and some people are truly funny?  Leah is truly funny.  No effort required.  Funny enough to win Real Awards.  I'm more than jealous. 

I love the HonestsCrap award best of all because it lets me talk about me in a selfish and unadulterated way.

And I need a little bit of that right now, at the risk of sounding like a total asshole.

Ready?

Go...

So, there is a Cancer Support group next week at the Starbucks on 10th and Chestnut.  It's for people ages 18-45 who are currently undergoing cancer treatment or have a history of any type of cancer diagnosis.

Starbucks is such a douche.

What would I say?  How do those things work?  Is the coffee free?  Is the cafe area closed for privacy?  Is it like AA?

"Hi my name is Lora and I was told at age 27 that I have cervical cancer but no one would treat me because if they treated me properly I'd never be able to give birth even though I've never had a desire to be a mom so they just monitored it and patted me on the shoulder and said 'everything looks the same as it did so we are just going to hang on and see if you change your mind about being a mommy' because our healthcare system is run by Conservatives who find more worth in a sick woman who can risk her own life by pumping out babies4jesus than they do in a well one who isn't fertile anymore. 
Put your hand down please.  Of course I saw more than one doctor.  I'm not retarded. 
So they just monitored it and periodically cut out the nasty chunks at these in-office procedures that would leave me bleeding and cramping for weeks and then when they finally decided to properly treat me I accidentally got drunk pregnant the week before so they let it go for two more years through the pregnancy and when they lost my test results in the shuffle of my doctor leaving and the practice getting a new office space and -
Put Your Hand Down, Please.  My doctors were at Pennsy.  You know, the best effing GYN hospital in like the free world?  Yeah, that one.-
and so they let it go and it got so bad that someone had the sense to give me a proper gouging  and even though it didn't magically disappear it seems that now, two years after the Big Real Surgery I might be all better."

breathe.

"Yes I have cancer in my vagina, but stop looking at me like you think I got it from a virus.  I don't look at you funny when you talk about where your cancer is.  It doesn't always have to come from a virus you know.  It's not fucking sympathetic when I say 'I have cervical cancer' and you say 'oh, my sister had that too, the one with the warts and stuff, right? She was so embarrassed.'.  Wrong.  But so what if it was anyway?  Icky stuff can happen to your crotch when you get laid.  Big deal.  It can happen to anyone, I'm just lucky it didn't happen to me.  And you are so. fucking. fat. from the crap you shove in your mouth every ten minutes because it's the only way you can deal with the fact that your mommy never hugged you enough when the other kids called you out on being a geek.  Stop judging people for repercussions of shoving something in their crotch.  At least they can hide their scabby genitals.  You can't hide your level of disgusting gluttonous gelatinous self hatingness self indulgent-ed-ness...
Moving on.
Cervical cancer turns you into a fucking pariah.  Herpes gets more respect than cervical cancer.  Sometimes I wish I had herpes.  It's more normal and less stigmatized.
I'm so tired of people.

"And breast cancer campaigns.
I'm so tired of breast cancer campaigns.
You have no idea how tired of breast cancer campaigns I am.
Like society is doing us girls a favor that it finally recognizes that we can actually be physically sick and not just mentally hysterical.
Girls score a point! 
Girls 1
Boys 18098
Cute, though, that we can talk about tits, finally.

"Breasts breasts breasts breasts breast breasts breasts.  Pink pink ribbons ribbons donations pink fuck.
"Save the ta-tas"
"Fight like a girl"
"Save second base"
"Real men wear pink"
I could puke.

"When can we finally talk about vaginas?  And cervixes and uteruseses.  Maybe when we can start acknowledging vaginas people will finally start getting treated fairly and completely and with respect.
Six years of maintenence is five years too many.

breathe.

"So here I am, maybe hopefully fingers crossed that I'm at the end of all this and you know what?
It's scary to be done.
Getting cancer cut out of you removes a lot more than scabby lumps of cancer.

"If I don't have cancer, what do I have?
If I'm not a cancer patient, does that make me a cancer survivor?
Do I have to be?
Can't I just forget about it altogether?
Pretend like I'm just me, and always was and always will be, and that I didn't just go through that?
If I don't have doctor's appointments six times a year, who will make sure I'm still okay?
Where do I channel the anxiety?  The hope?

"Without the cancer to concentrate on, I notice the arthritis more.  What used to be a dull and constant ache now meddles in my daily life.  'I'm still here', it knocks.  'I will not be ignored", it whispers.
'Fuck you', I say.  'You aren't the boss of me'.
'What about me?' screams the migraines. 'You didn't think I was gone for good, did you?  You blamed me on the stress of your rotting lady parts for the past few years, but I have another cause.  I've been here longer than the cancer.  Remember the scans and the x-rays and the poking around the doctors did when you were in kindergarten?  I've been here for a long long time.  Let me remind you of how your grandmother died of a brain tumor 25 some years ago.'
'Fuck you too', I say.  I've been dealing with you for 30 years and I've decided to seek some professional advice and professional advice has come a long way since 1980".

"And me?', asks the rest of the world.
'You I can deal with, in small doses', I say as I step up my work ethic a few notches.  'I've been neglecting you a bit while I hid out in myself for awhile but I'm back'.

"And me?', says Jake.
"I don't know what the hell to do with you, so let's for funsies just run each other into the ground for the time being.  It's really nice to know that I'm healthy enough to watch you grow up."

breathe.

"Thank you."

breathe.

And then I would probably just leave because I don't want to/can't handle to hear anyone else's sob story and heartache and I just really needed to get all that off my chest to people who would listen and understand.

45 degrees:

Lori said...

Listening. Understanding. Anytime.

JenK said...

Hi. I am a really good listener. Really good.

And I talk about my vagina/uterus all the time. So there you go- you can chat me up about your girly parts and I won't judge you.

I might- however- make old lady cracks about your arthritis. 'Cause I'm also a bitch. I blame my own arthritis.

PorkStar said...

Wow, very interesting post.

Although I'm a dude, my closest friends do tell me I have a vagina and well, I think I do, so there's a lot that I will take into consideration from now on.

M.J. said...

Further proof of how sexist our society really is....

Swistle said...

Okay, I think the first thing we need to do is choose a color to represent vaginal/cervical/uterine cancer. Do they each need their own color, like breasts have? Or should we choose one color to encompass all of the Girl Cancers, including breast cancer? Pink does make a certain logical sense, but I agree it should include ALL the girls-only cancers (I know guys can get breast cancer, but I don't really think of those as breasts, more like CHEST cancer), and then the boys can have baby-blue to represent testicular/vascular/prostate/penile cancers.

MYSUESTORIES said...

Whoa...THIS post exhausted me just reading it!
Answer to your question...When can we go start to talk about vaginas? Well, um, YOU'VE been doing it for quites some time already, no?

And where can you go to channel all that anxiety?....Welcome to blogging.

My theory? Save a loved one. Write a blog. It's what's kept me from slaughtering my family (so far)

Amanda said...

I think some wise person said this before, but I'll say it again ;) When you're diagnosed, you can make a plan. You have tunnel vision on getting well. There's no plan for cured. They just tell you you're "normal" and send you out the door leaving you thinking "Well what the fuck do I do now?" because you won't be at the doctor 8 billion times a year and taking 6 gazillion medications anymore. It's as if your world has been turned inside out by the doctors telling you that you're all better because what was your norm, your routine, is now ripped away from you.

C. Andres Alderete said...

Great post.

susan said...

I hate every single second of isolated and ignored and unsupported that you've felt through all of this. It's not right that you ever felt less than respected and honored and genuinely cared for. I might not always know the right thing to say, nor do I have the experiences necessary to always empathize, but my ear/shoulder are always yours and you have all the sympathy I can muster!

LOVE YOU!!!

Haley said...

Im with you on the looks you get when you say you have cervical cancer. I hate having to explain myself. sometimes I don't and just leave them to wonder. I hate that though. I hate feeling dirty when Im not dirty.
Im currently mad at my vagina. I had my follow up appointment and got my pap results back. Positive for abnormal cells with mild cellular changes. WTF. Im pissed. Im frustrated. You can't just cut my vagina out. I need that. So, back to square one...biopsy, the 28th. That gives me time to man up and quit crying and become the pissed off person I need to be to get through the damned procedure. Vagina, vagina, vagina. I think my vagina is mad that my cervix, uterus, and left ovary have jumped ship. We should get t-shirts that say, "just because I have cervical cancer, that doesn't make me dirty." In our favorite robins egg blue. I want one that says "knock it off vagina!"

Rinny said...

From one gelatinous dieter to one vagina - thank you for saying you are sick of breast cancer campaigns. I am too. I am all for curing cancer and research and all that....but I sure do despise the color pink.

anniegirl1138 said...

Oh good, I am not the only one sick of being guilted by grocery store clerks for donations to breast cancer research. Frankly, if women paid more attention to the studies of late, they might not be so grateful for all the attention. Apparently a lot of what is pushed at us in the name of "saving us" is questionable science and may actually be harming us and even giving us cancer.

My doctor is even so stupid he buys into the hype in favor of paying attention. Annoying when I have to lecture him on facts.

Yeah, the lady parts are fine if they are being exploited for entertainment purposes, but God (or whomever) forbid they exhibit symptoms outside the pleasure realm. People are appalled because my 7 yr old girl knows all about menstrual cycles. Why shouldn't she? She's a girl. A girl who followed me everywhere for the first 4 years of her life. Can't keep much a secret that way. And why is femaleness such a secret? I don't get it.

I am digressing.

Hijacking.

Bad me.

Always a pleasure to be someone with whom you share your thoughts.

Maureen@IslandRoar said...

Talk about Honest Scrap!!!
This is a provocative, amazingly great rant on a very important topic! Well done.
And congrats on all those awards.

Tracey said...

We owe you a mocha latte. Venti.

Heather said...

It's because it is too hard for people just to say, "Looks like your fucked."

We get all that bullshit in mental illness land too.

Lynn said...

"Save second BASE???"
Are you fucking kidding me?
This is a slogan?

omchelsea said...

Cancer campaings... yeah. Bowel cancer, people. NOT SEXY. BIG KILLER. If we were all a lot more honest the world would be a much grimmer and much more cheerful (yes! at the ssame time! crazy, I know!) place.

Tom Bailey said...

Maybe a female version of Lance Armstrong is what women need?

Fortunately you are posting on blog and not venting to people's faces. I have had to work on not making people wrong for their charitable feelings because I do not know what they are tied to. For example I asked a person like I do on my blog which charity would you give a million dollars to if you could give it to only one? And they said myself charity starts at home....

I then said... what does that mean? A new Ferrari in your driveway?

He said no.... my mom has schizophrenia and my aunt has demesia and I am quitting my job to take care of both of them so my relatives do not put them in homes...

My experience changed my calousness in charity.... Feel grateful that you have not had to swallow your words.

Best regards all the same...

Lucy said...

Doesn't it feel good to get it off your chest, oops, pun was not intended.

I love using my blog for such things!!!

Jeve (aka John and Steve) said...

Yowsa. This was intense. Thanks for keeping it real.

Shelly Overlook said...

Personally I think your vagina is quite lovely with or without herpes/cancer/crabs - whatever!

I was wondering this weekend (watching NFL players wearing pink shoes) when breast cancer became so commercialized. I mean, the pink shit is everywhere. It was genius marketing, I guess, but on the other hand, it's so overdone I think we're all becoming either desensitized to it or annoyed by being constantly confronted with pink. Don't get me wrong, breast cancer runs in my family, I've lost loved ones, but when did breast cancer get to be THE cancer? Who decided that?

Tiffany said...

Wow, that's pretty heavy. I'm not entirely sure what I can say that'll have any level of intelligence in response! You're so honest and straight-forward when you post about serious stuff. It's very real.

noexcuses said...

Totally awesome post, girl! You manage to piss off, or endear yourself to, everyone who tunes into you. When I see you've posted on my dashboard, you are always the first one I read!

What's the shit about fatness and shoving food down because mommy never hugged me? Who told you about me? I'm trying so very hard to break the cycle. I see it coming to fruition with my wee 18 year old. God help me.

And you want to know what you do now that the appointments and tests and surgeries are over? You give back. That's all. Make a difference in one life that is going through the hell that you came out of. I swear, it tastes so much better than any Milky Way bar working its way down!

I love it when you wake me up like this!

JMH said...

I could sit here and stare at this blank comment form probably for another hour yet trying to distill my thoughts enough to match your intensity. But I have things to do, people to see.

It's fun to listen and try to understand. The past couple posts (I like your take on death -- more like life) feel like when I used to put my face really close to those chain curtains in front of a lit fireplace, what with all the snapping and cracking and that burning pain/pleasure and oh god that smells like hair or is it eyebrows?

However...

I'm boiling water (I eat late) so sitting here for an hour is probably not a super idea unless I want to really get into that fire comparison.

Zip n Tizzy said...

Here's to your Moxie Lora!

Now may this take a backseat to your living your life fully as you always do.

Nicole said...

I love you. I fucking loathe the pink ribbons and pink hats and pink lights of October.

Septmber is National Ovarian Cancer Month. No one notices. My favorite aunt died of OVCA six years ago. Both my sister and I are at risk; I've already had surgery on my left ovary, when I was 27. I have a teal ribbon tattoo. Most women diagnosed with ovarian CA don't know until it's too late because there's little funding for research, and even less pushing for awareness. Meanwhile, we're bombarded with The Great Tit Campaign And Money Grab.

Sorry for the rant.

MemeGRL said...

Whoa. Way to put it all out there. That's a hell of a time of it you've had. For those of us late to the party, thanks for the quick catch-up.
Great use of blog here.

Anna-Lys said...

I l.u.v. it when you breathe...

;)

Thank you following me - I have recrip...recirpop...recricipoc...

I am now following you too...

xxx
A-L F

SM said...

Does cervical cancer have a colored ribbon? Who chose pink for the breast cancer anyway? Why do people fall for the grocery store/drug store scams at the register? Don't they realize that only the teeniest-tiniest portion of their purchase goes to "breast cancer research?"

I won't get started. We aren't talking about titties here. We're talking about vaginas and cervixes and...whats the plural of a uterus? Uteri or uteruses? Either way, I agree - we need to talk about them more. I'm sorry, but if i "get" to hear about some old dude's boner (or lack thereof) or prostate cancer every commercial break then we can handle cervixes and vaginas.

Brndoutw8ress said...

Congrats on your award! I just wanted to stop by and let you know I saw your comment on my blog about the book. Definately buy it! It's not Jesusy at all, it truly is a wonderful book, you will love it, I promise.
PS Great post about vaginas!

Susan/No more Lil' Mommy said...

I do have a Save the Ta Tas shirt and I will make a Save the Va-Jay-Jay shirt just for you!

Becky said...

"Save the Cervix"?

"Save the Hoo-ha"?

No?

Hm. Back to square one, then.

Jay Ferris said...

I too am a good listener, provided there are no breasts in plain sight anywhere.

f8hasit said...

I'm not sure what to say without it coming out like I've got the biggest girl-crush on you.

You continue to amaze me.
Your honesty.
Your openess.
Your insight.

wow.
:-)

Leah Rubin said...

I can't believe what you have had to go through... It totally sucks, every stinking second of it. I can only hope that you had wonderful friends/family to share all this with you when it was unfolding.

You're right about all of it-- the judging, the ranking of whose disease is more sympathetic. You say it all so well.

I really wish I had read this before I posted my "Things I Want Thursday" post, because I would have added "I want us all to listen to each other better."

I'm listening, kiddo. Any time.

Isabella said...

Lora - I am always shocked by what doctors tell us. I know there are many very good doctors but I had a scare that turned out to be nothing...but I could not sleep. I needed to know and get it out of my body. Sometimes I think they forget what it's like to live with that kind of stress.

Thanks for sharing.
Isabella

Val said...

Okay. Not sure what I am thinking or what to say.
Um, cervical cancer is a bitch.
And boobs suck.

Yup, boobs suck.

Let's go Phils?

Sue said...

great post. i get it. all.

oxkathleen143xo said...

Just for you...

http://www.zazzle.com/cervical_cancer_chick_interrupted_2_tshirt-235159382071499277

Hippo Brigade said...

I love talking about vaginas! Boobs are so 2008. They can take their pink and shove it in their vaginas.

Heather said...

I know I of all people should be all, hey, it's lora, pay it no mind, but this stings.

"And you are so. fucking. fat. from the crap you shove in your mouth every ten minutes ... You can't hide your level of disgusting gluttonous gelatinous self hatingness self indulgent-ed-ness..."

and yes I totally read all the other stuff apart from that, but yeah, that. hmmm. yeah.

troglodytis said...

stupid people suck, even when they are doctors.

who doesn't talk about cervixs?

look, i've never had cancer(but my dog is about to die from it)

and i didn't get a vagina(but if i had one made it wouldn't ever menstruate, so what's the point)

but i didn't know we weren't talking about vaginal cancers. i haven't found a body part that's not worthy of talking about, or one that doesn't suck to cancer.

but i'm a simpleton

Jen said...

I think everyone else has said it all soooooo . . .

Here's to a cure for arthritis!

My fucking knees and fingers are killing me.

Cheers!

babyrocasmama said...

That's Awesome. I love the sarcasm and humor. It's very much like me.

I KNOW how that feels. Luckily I had a great OBGYN who took care of me and still continues to do so. But so many others do not have that and it makes me sad.

I am sorry you went through this. That is far too long to wait for good treatment. But I am happy you are better now.

I also have the migraines, psoriasis, ulnar neuritis and the distinct possibility of getting rheumatoid arthritis at some point (family history).

It also bugs me that breast cancer gets all the press and cervical cancer gets almost none. This needs to change.

I will now be stalking your blog from Google reader. It rocks and so do you.

Alicia C. said...

I decided when mine was gone, to let it be GONE. I can't let "surviving" it rule my life...

As long as I stay better, I'm better.

Rock on; you're awesome!